The case for a national service for primary immune deficiency disorders in New Zealand
Rohan Ameratunga, Richard Steele, Anthony Jordan, Kahn Preece, Russell Barker, Maia Brewerton, Karen Lindsay, Jan Sinclair, Peter Storey, See-Tarn Woon
Primary immune deficient disorders (PIDS) are rare conditions for which effective treatment is available, particularly if recognised early. Treatment of these conditions requires the expertise of adult and paediatric immunologists. Currently not all patients are under the care of immunologists, leading to variability in care. There also inconsistencies in the use of intravenous immunoglobulin, which may have contributed to a shortage necessitating importation of product. A national PID service would result in an improvement in patient care and a substantial reduction in costs.