Accuracy of ethnicity data recorded in hospital-based patient clinical records and the Australia and New Zealand Dialysis and Transplant Registry
Matthew J Page, Emma H Wyeth, Ari Samaranayaka, Bronwen McNoe, Rachael C Walker, John Schollum, Mark R Marshall, Rob Walker, Sarah Derrett
Collecting accurate and consistent ethnicity data information is necessary for healthcare planning, provision and monitoring, especially to address health inequities. We investigated the accuracy of ethnicity data for a group of end-stage kidney patients using data from a clinical registry, hospital records and from a research project where these participants reported their own ethnicity/ethnicities. We found there were high levels of agreement between the three different ethnicity data sources. However, it is recommended that the same collection methods are used for all research and clinical activities in New Zealand.