Patients’ and clinicians’ views on shared decision making in cancer care: a qualitative study of Aotearoa New Zealand patients’ and clinicians’ perspectives | OPEN ACCESS
Karol J Czuba, Rachel Owens, Pieta A Brown, Te Hao Apaapa-Timu, R Matthew Strother, Ryan P Radecki
Our team wanted to understand how we can use digital health tools to enable patients to exercise their right to self-determination/rangatiratanga of health and wellbeing. We talked to 31 participants, including patients with cancer and clinicians. Their stories revealed a broad range of experiences in relation to SDM, highlighting a gap between the SDM expectations and its practice. Patients and whānau want to participate in making decisions about their care, to hold authority in this process and to have their needs and preferences considered beyond the biomedical model. However, there are multiple barriers that limit patients’ engagement in SDM, including lack of clinical time and resources, patient and clinician attitudes, inherent healthcare system constraints, and the overall uncertainty surrounding cancer care. Our findings contribute to building Te Tiriti responsiveness across the cancer care and other health care settings; for example, by recognising patients’ preferences for treatments such as rongoā (traditional Māori healing) and that Māori approaches to health and wellbeing are holistic and encompass concepts of collectivism rather than individualism. Future work should focus on key content and design features of decision tools, supporting SDM processes, improving information transfer and comprehension, and facilitating equitable experience and outcomes of cancer care for all patients.